Talk:Septo-optic dysplasia

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[edit] medical advice request

I have a 8 month old daughter that was diagnosed 1 week ago with septoptic dysplasia, she have irregular eye movement and is slow on her psycomotor skills like rolling over, crawling etc. I live in HOnduras Central America and faraway from the Cities I live on an Island of the Coast of Honduras, I would like to know What can I buy to do therapy on my baby at home, whatever help you can give me I would appreciate maybe a web page that sells things to do these therapies please help me

Wikipedia cannot provide medical advice. If the delayed motor development and irregular eye movmements are due to SOD, there are no medicines or treatments you can buy that will change those. As described in the article, if a child with SOD is lacking some of the pituitary hormones, replacement of those might help the development, though not the amount of vision. If you were in the US in a remote area and asking the same question, I would give you a clear answer: it would be worh a visit to a large city children's hospital to ask those questions of a pediatric neurologist, a pediatric ophthalmologist, and a pediatric endocrinologist. However, I do not think I can guess the access to resources of a person who writes fairly good english and has internet access in an unevenly developed country like Honduras, nor whether you would find value in a local treatment I might consider a placebo. Best wishes. alteripse 13:25, 19 August 2007 (UTC)

Make sure she has a full endocrine work-up, because SOD can be a life-threatening condition notably because of cortisol deficiencies. Make sure there is music in her environment, particularly if she is attracted to it, and try to use musical talking ('sing-song' speech) to stimulate conversation. It's up to you to provide physical stimulation, moving her arms and legs. 'Pattern' your child physically in the crib and as she begins to crawl. 71.106.5.16 22:35, 19 August 2007 (UTC)

The adrenal insufficiency risk is remote if no replacement has been started, but you are correct it should be assessed. However, recommending patterning is simply cruel: it is an expensive, not universally available sham treatment that has been shown repeatedly to have no objectively demonstrable value, and is often sold with fraudulent promises. The last thing she needs is expensive American quackery. alteripse 22:47, 19 August 2007 (UTC)

That user is not recommending a quack therapy. She's recommending what you should do with all non-sighted infants, in an effort to keep their brains stimulated. Also, keep in mind that as some infants with SOD mature, their brains often learn to make use of the very limited visual information they are receiving... Many parents with have a sixth sense about whether their child is completely blind or not. That may not count as "medical advice," but it is parenting reality. 209.78.98.26 20:52, 23 August 2007 (UTC)